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Evan has an answer...
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ashleykaymay
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PostPosted: Tue May 11, 2010 8:15 am    Post subject: Evan has an answer... Reply with quote

Well, we met with Dr W again today. It's been three months since we saw him and in that time, we've finished up the testing for any and every metabolic disorder. It's safe to say we've come to the end of that road. When I went in today, I wasn't expecting much to happen. Maybe just catching up. But nope...I was greeted with a diagnosis. He said that since Evan does exhibit signs of Autuism but he does things that don't fit classic Autism or Aspergers, he is being diagnosed with PDD (Pervasive Developmental Disorder) aka Autism Spectrum Disorder.

As soon as he said those words, I felt oddly at peace. I think he expected me to freak or at least react and I might have confused him with how I did react. When we came in a year ago, we were so sure we would get an answer and autism was a scary thought to us. As you all know, we've been put through the ringer more then once. I was at the point where I had gone through every stage of grief at least 5 times over and I had accepted that we were never going to find an answer. So when he said it while we all sat on the floor, it was like this huge weight lifted up off of my shoulders. Because now, it's just moving forward.

We go back in two weeks or so for a follow up appointment. He wanted me to take a week to read all the info he gave me and let me think it all over in my head so I can come back with all my questions then. After that, we will take over the medical report to the school to get all the therapies and every he needs started straight away. He said the only thing we won't be able to get on base is ABA therapy but he wants to see how Evan handles everything we are planning already before we think about trying to get that.

All in all, I'm happy we can start to get him all the help he needs. For months now, we've just been treading water and it's finally nice to actually start moving again. This diagnosis will help him get so much help now. It's pretty hard to get Tricare to approve something just because he has "issues". It will also help things on base...for example, Evan needs to see a dentist bad but will need to be sedated just to even look at this teeth. Dr W said that they are more then happy to do that for kids like Evan. And he gave me hope as well...some kids may need lifetime help but some, some turn out to be "normal" kids that just have a few quirks.

I'll keep everyone updated as this goes along. Thank you so much to all of you for all the prayers and thoughts sent our way since this all started. Hug
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mama2LilynDevon
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PostPosted: Tue May 11, 2010 8:19 am    Post subject: Reply with quote

I'm so glad you finally have an answer. Hug
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PostPosted: Tue May 11, 2010 8:21 am    Post subject: Reply with quote

So glad to hear that you are getting some answers and assistance. You've been waiting long enough... that's for sure. Hug
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PostPosted: Tue May 11, 2010 8:22 am    Post subject: Reply with quote

I am so happy you have an answer and that Evan will be getting the services he needs. I wish I could just give you a big ole hug.
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dontletstart
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PostPosted: Tue May 11, 2010 8:43 am    Post subject: Reply with quote

Hug I'm so glad you finally have an answer and that now he'll be able to get the services he needs.
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PostPosted: Tue May 11, 2010 8:47 am    Post subject: Reply with quote

bug hug
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PostPosted: Tue May 11, 2010 8:48 am    Post subject: Reply with quote

Hugs to you, Ashley Smile
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Kristi Ashley
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PostPosted: Tue May 11, 2010 8:52 am    Post subject: Reply with quote

Big hugs Ashley. My nephew is an aspie kid and I know many, many others who have pdd. If you ever want to vent or need a shoulder I'm here. You are right though, it must feel good to be moving again and not just in limbo.
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PostPosted: Tue May 11, 2010 9:19 am    Post subject: Reply with quote

i am soooooo glad you finally have an answer and that you can start properly addressing the issues and supporting him where he needs support Hug Heart
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PostPosted: Tue May 11, 2010 9:20 am    Post subject: Reply with quote

You did it, Ashley. I hope things are smooth as you are all able to move forward from here.
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PostPosted: Tue May 11, 2010 9:25 am    Post subject: Reply with quote

I'm glad you have an answer and you guys can start moving forward. ((Hugs))
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PostPosted: Tue May 11, 2010 9:51 am    Post subject: Reply with quote

I'm so glad you have an answer and he will get the help he needs now!
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PostPosted: Tue May 11, 2010 9:51 am    Post subject: Reply with quote

Wow that was long wait. So glad you can move forward and help Evan to be all that he can be :D
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PostPosted: Tue May 11, 2010 10:21 am    Post subject: Reply with quote

I am so, so glad you finally have an answer and can now rest and feel at peace in some way. Hug
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PostPosted: Tue May 11, 2010 10:39 am    Post subject: Reply with quote

I'm glad you finally have an answer. I agree, a diagnosis beats dealing with the unknown. At least you know that it has a name. Hug I hope all the pieces fall into place quickly to get him the help he needs.
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