Headed to the neurologist

MrsMcCullen07 · Posted: Wed Apr 07, 2010 7:09 am Post subject: Headed to the neurologist

We are going to be headed to the neurologist in the next hour and we have so many hopes for today ..

1. We can get JohnPaul off his seizure meds
2. We can get him on a good vitamin ... I am super concerned he is not getting enough calcium & vitamin D
3. Referral to the Pediatric Dentist

Please keep us in your thoughts that JohnPaul is still doing good and his head growth isn't too much ... and we can get him off the seizure medicine
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littleknittles · Maxed out Hyena Joined: 17 Aug 2009 Posts: 5279 HC$ 63.54

good luck!!!!!! Hug

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JenniferRN · Maxed out Hyena Joined: 17 Jul 2009 Posts: 3513 HC$ 66.08

Good luck, I hope all goes well for you both today.
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kbrown99 · Posted: Wed Apr 07, 2010 7:53 am Post subject:

Good luck! Hoping everything goes well today.
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WWBathCo · Posted: Wed Apr 07, 2010 9:37 am Post subject:

Good luck! Please update us when you have a chance. I'll be saying a prayer for you and John Paul!
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dollymae2 · Posted: Wed Apr 07, 2010 11:25 am Post subject:

I hope all went (is going) well! We'll say a prayer for you guys.
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Kristina93 · Posted: Wed Apr 07, 2010 11:45 am Post subject:

Prayers heading your way!
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liz4185 · Cub with 1 spot Joined: 24 Mar 2008 Posts: 49 HC$ 7.59

Prayers for you, I hope the visit went well!

JBTreasures · Posted: Wed Apr 07, 2010 2:06 pm Post subject:

Hoping all went well!
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MrsMcCullen07 · Posted: Wed Apr 07, 2010 2:52 pm Post subject:

We're Home ..

The neurologist thinks since JohnPaul has so many alleriges we should keep him on the seizure meds a bit longer since antihistimanes are a seizure trigger (as is cold medicine didnt know that) ... he said 2 years seizure free (even with benadryl usage) and we could get him off .. he referred us to pediatric dentistry there Smile

and told me to pick any good vitamin .. so what do you recommend ?? for a 2 1/2 year old
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Brandi mama to JohnPaul 08.07 and R.E. Lee 03.10 expecting a new squish 08.12

littleknittles · Maxed out Hyena Joined: 17 Aug 2009 Posts: 5279 HC$ 63.54

well it's great to have an identified end point!

as for vitamins, check health food stores rather than mainstream to avoid the higher levels of sugars, dyes, preservatives, etc.
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dollymae2 · Posted: Wed Apr 07, 2010 8:39 pm Post subject:

Random regarding vitamins: My brother recently posted on his Facebook that he is becoming an expert in the use of vitamins to treat epilepsy. (He's in pharmacy school.) If you want I can ask him if he has any suggestions. You may have already found out all he knows in your research, but maybe not.
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MrsMcCullen07 · Posted: Thu Apr 08, 2010 8:20 am Post subject:

I would love toknow what he knows/finds out Smile

... thanks
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Brandi mama to JohnPaul 08.07 and R.E. Lee 03.10 expecting a new squish 08.12

thesewingbox · Posted: Thu Apr 08, 2010 9:54 am Post subject:

dollymae2 · Posted: Thu Apr 08, 2010 10:26 am Post subject:

Here is what he just sent me:

"As far as vitamins for epilepsy go, there seems to be some possible neuroprotective benefit from B vitamins and vitamin C. There is also a bit of evidence for vitamin D. Folic acid is questionable, though in women of child-bearing age is probably a good idea--but it can also cause seizures. Unfortunately all of the actual studies were done using mice and rats (I guess people didn't want their brains removed to study the neuroprotective effects)."

He will also be emailing me a copy of the lit review he did for class. Can we do attachments on PM? Otherwise I can copy and paste into a PM for whoever is interested.
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Isaac Christopher 4/11/2007
Makarios (Makary) David 1/10/09
Joseph Peregrin 9/26/10

Support Paint a Miracle--use Goodsearch.com PM me if you want more info http://www.paintamiracle.org/

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