Why we're here!
Hi All and Welcome! I just wanted to give a little background on why I’m doing this little shop—its all for my awesome lil man Jakob! He is a super happy, super active little boy who turned 6 in January. That being said, it’s not always been easy for this little guy.
The first few months of life, Jakob was very sick—I mean literally sick up to 5-6 times a day. He could keep nothing down and all dr’s would say is Gerd/Reflux and prescribe more reflux meds. By the time he was 5 months I realized his pediatricians were missing something and asked to be referred to a specialist. They sent us to a GI who also didn’t want to listen, but I demanded some tests be run. Within 2 weeks, Jakob was diagnosed with Nephrogenic DI, a rare kidney disorder. In short, if he doesn’t take 2 separate medications 3 x per day and be allowed to drink all he wants he would urinate out every drop of fluid in his body causing dehydration which can lead to shock, coma or even worse. He didn’t have reflux—he was dehydrating daily! Today he takes in more fluid than I do!
At 7.5 months and still 12.5 lbs Jakob was labled Failure to Thrive and his first J tube was placed. He now only uses his feeding tube overnight for extra hydration and calories. While we would like to see him off the feeding tube altogether, Jakob does not eat any solid food at this time, so being tube free is still a thing of the future.
April, 2011 Jakob received his second diagnosis of Autism Spectrum Disorder. He no longer speaks any words and for a long time eye contact and socialization were very difficult for him. Through therapy and lots of hard work we are seeing improvements and are so very hopeful for his future.
Sooooo, moving on to today---I would love to hear my lil man talk. I’d love to see him eat. These are just 2 of many things we are working on, but have a very long way to go. I’ve created Jakob’s Ladder to help with that. All of the proceeds from anything sold go directly into a special fund that only pays for added therapy and therapy tools for Jakob. There are new and exciting treatments and therapies advancing every day for Autism and Sensory Processing Disorder, but here in Michigan, our insurance doesn’t cover these just yet—I don’t want him to have to wait to take advantage of everything that’s out there for him!
Thank you so much for stopping by and checking out Jakob’s Ladder and taking the time to get to know him a little bit better!